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Tuberous Sclerosis Complex and Drug Licensing

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Constituents have expressed concern about the availability of Everolimus for subependymal giant cell astrocytoma (SEGA) associated with tuberous sclerosis complex. NHS England have decided not to consider this treatment for routine commissioning this year. The overall budget for specialised services in England is considerable, at around £15.7 billion per year. NHS England has to make difficult decisions about how to prioritise available funding. To ensure that investment decisions get the best possible patient outcomes, NHS England has established an annual prioritisation process led […]

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